SKIGGLE - HELP FOR PEOPLE LIVING WITH COMPLEX REGIONAL PAIN SYNDROME (CRPS)

Welcome to Skiggle. We exist to support people living with Complex Regional Pain Syndrome (CRPS), their carers and their families.

There’s no other disability charity like Skiggle in the UK. We are able to offer help and a network through our online community, marketplace and forums.

We offer support for disabled individuals, by funding and operating a unique round-the-clock SOS emergency alert service. This provides a place for people to turn to if they urgently need a piece of equipment, feed, or disability care product.

The Skiggle Community Marketplace offers our UK based members the chance to obtain, swap or sell much needed essential care products when they need them.

As a vaguely understood condition, Complex regional pain syndrome (CRPS) causes a person to experience persistent severe and debilitating pain. Many cases of CRPS are triggered by an injury, and the resulting pain is much more severe and long-lasting than considered normal.

So if you are living with Complex Regional Pain Syndrome, the Skiggle community is here for you.

6 step guide

Six quick steps to searching the Skiggle Marketplace to find care-based essentials:

  • Step 1: Register by signing up
  • Step 2: Visit our marketplace
  • Step 3: Use the search function to find what you are looking for
  • Step 4: While some items are listed as ‘free’ some may have a cost
  • Step 5: Reach out to the seller directly (note: Skiggle does not store items)
  • Step 6: Receive your items and say thanks!

Don’t forget – you can also rehome your spare care-based essentials on our marketplace too.

Not all disabilities are visible

Skiggle ambassador, Mark Clougherty was first diagnosed with Complex Regional Pain Syndrome (CRPS) following a nasty leg break in 2009, which ultimately led to his medical discharge from the Army four years later.

Mark has described this rare neurologic disease as "a brutal condition that affects your nervous system and for me, the legs are the target. The toes on my right foot have started to curl over, I get regular spasms in my calf, and my legs can basically just turn to jelly and collapse under me. It’s hard, but you’ve got to find your own way of coping."

Mark has been very honest with Skiggle about how the CRPS affects him as he wanted to speak out about how not all disabilities are visible. You can read his full story on the Skiggle blog.

Tremors associated with CRPS

Veteran and Invictus Games gold medallist, Mark Clougherty tells Skiggle about how he experiences "horrendous" tremors and how his worst experience was losing the use of his foot for 3 days.

CRPS and signals from the brain

Veteran and Invictus Games gold medallist, Mark Clougherty tells Skiggle about how faulty signals from the brain can affect how his muscles work, especially his Hamstring and Gluteals.

By joining Skiggle, you’ll have access to:

The Emergency SOSAcross the UK, we're here to help and support disabled people with their urgent requests with our Emergency SOS service. Simply sign up, and send an SOS request!

The Online MarketplacePerfect for finding much needed care-based items and essentials, as well as rehoming your spares for the Skiggle community.

Facebook ForumA social space for disabled individuals, their carers and their families to connect with our community online.

Carers for ChangeWe offer a chance for carers to be involved in positive change, both for members and the wider community.

"Had some unused bottle adapters that were no longer needed. Sent them to a lady in Doncaster rather than landfill. Brilliant idea."

E PENROSE (FACEBOOK REVIEW)

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© Skiggle 2020. All rights reserved. Registered charity in England & Wales (1185108), Scotland (SC050478)
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